I read a lot of your webpages, and I just don't know what to think or say, but I found it very very moving.
I'm badly disabled with MS, but until 10 years ago, I could walk.
I had a lot of normal years.
I'm just now learning how you, and friends I've made who have CP, have felt from their first moments of consciousness.
Warmest regards,
Richard Long
Vancouver, BC
Subject: Re: [OZADV] Thesis completed
From: "Bill Carne" uncrazy@capitalnet.com
Date: Fri, 23 Aug 2002 23:53:03 -0400
To: ysinger@worldnet.att.net
Hi Yvonne
I am a Canadian. And a "schizophrenic".
Can I forward your thesis to our Council of Canadians with Disabilities - the CCD?
It is an "umbrella group" for something like 50 groups of people with different - mainly physiological - challenges.
I suspect many would appreciate what you have written.
Can I presume your research was done in Australia?
Best wishes for your future endeavors.
Subject: Re: Greetings Tommy
From: "Tommy Thompson" binary_man@hotmail.com
Date: Tue, 03 Sep 2002 19:02:44 +0000
To: ysinger@worldnet.att.net
Hi Yvonne,
I read your web page and you have an amazing story. I will add a section to my webpage soon for friends online that have similiar stories you and I face.
Keep up your fight.
Tommy Thompson
http://www.information02.cjb.net/
Subject: Your writing
From: Joan Fleitas jfleitas@FAIR1.FAIRFIELD.EDU
Date: Fri, 13 Sep 2002 14:48:43 -0500
To: ysinger@worldnet.att.net
Yvonne, your essay, "Yes, I Do Exist" is wonderful, and I would love to put it on my website with a link back to you, of course with your permission. I hope that you'll have a chance to peruse my site (link below), and let me know. All the best, Joan
Joan Fleitas, Ed.D., R.N.
Associate Professor of Nursing
Fairfield University
Fairfield, CT 06430
jfleitas@fair1.fairfield.edu
203-254-4000, extension #2707
fax: 203-254-4126
Band-Aides and Blackboards
http://www.faculty.fairfield.edu/fleitas/contents.html
Subject: 21st Century D.A.W.N. (Disabled Artist Worldwide Network)
From: LDKane12@aol.com
Date: Sat, 28 Sep 2002 22:52:01 EDT
To: ysinger@worldnet.att.net
Hi Yvonne.....My name is Linda Kane, assistant to Joe Hamilton, founder and director of 21s Century D.A.W.N. We have just recently published a website (http://www.21stcenturydawn.netfirms.com) to enable people with or without disAbilities to display their musical, artisitic and writing talents. Our interest sparked from a few things. We are both musicians and work in a day program for adults with disabilities instructing primarily in music as well as other arts. We are also both parents of children with special needs. Through our work and personal experience we have realized the value of the arts in everyone's lives as an extremely important means of self expression. If you would be interested, we would be honored to put any of your writings/poetry or anything else you would like to submit on our website. Take a look at our website and let us know if that is something you would like to do. Also, if you would like, we could put a link to your website on ours. And feel free to put a link to our website on yours. Good luck and God bless in everything you do. Looking forward to hearing back from you..........Linda
Subject: Re: A note of thanks and frustration
From: MJeff25916@aol.com
Date: Sun, 29 Sep 2002 00:19:26 EDT
To: ysinger@worldnet.att.net
I graduated with an Associate's Degree in computer programming in 1988. I'm working as a shipping clerk. I went through years of depression on not finding a job in the feild I trained for. I pulled through believing I will find something. You will too. Just go where your heart takes you.
"Long ago and far away, We had a voice, you know that we had a say, We won't live for yesterday, Ready or not, we're gonna have our way"
Twisted Sister Wake Up (the sleeping giant)
http://www.deesnider.com/twisted/albums/lyrics/zwake.html
Michael Jeffries
AIM and Yahoo! ID MJeff25916
ICQ# 53522767
Subject: Some suggestions concerning employment
From: "Carolyn Tyjewski" blinddyke@earthlink.net
Date: Sun, 29 Sep 2002 9:55:26 -0400
To: ysinger@worldnet.att.net
Yvonne,
It is my understanding that you are attempting to retain a position as a professor to teach on the internet. Putting aside for the moment that you have no teaching experience and that you state that it would be impossible for you to teach in a physical location due to disability, let's look at what you're presenting your employers when you show them your website as anexample of your work and ability.
You start off your website with an image of Snoopy and play the theme song to the Peanuts. Yes, it's cute but cute doesn't get one a job. Nor does talking "inspiration" -- unless, of course, you're applying for a job as an inspirational speaker (in that case, I'd suggest adding audio of a speaking engagement you've done). To put it bluntly, your site doesn't look like it's made by an adult woman looking for a professional position in any academic field. It looks like the site of a small child who wants/craves attention.
Suggestion: Look at some other sites of people attempting to attain professional academic positions -- several can be located on University websites (PhD candidates attempting to get their first gig). I guarantee, that none of them have Peanuts playing in the background or talk about inspiration and giving Disabled people a chance. They stick to the task at hand -- showing what they have to offer academia. And if what you show on your site is truly all you have to offer the academy then you aren't qualified to teach at the academic level -- on site or off.
--- Carolyn Tyjewski
--- blinddyke@earthlink.net
--- EarthLink: It's your Internet.
To see my recent work on-line goto:
http://www.disabledwomen.net/queer/paper-tyjewski.html
http://www.deliriumjournal.org/writings/cheu-tyjewski/learning.htm
Subject: Re: A word of thanks and frustration
From: "Becky" rawrew@wvadventures.net
Date: Sun, 29 Sep 2002 15:37:53 -0400
To: ysinger@worldnet.att.net
Hi Yvonne,
It saddens me that you have not been able to find a job.....You have shared with us on the SJU list that you finished college and have your degree.
I am a polio survivor and had to stop work as an Interpreter for the Deaf in our school system. I would love to be able to work, but can not due to my "Motor Neuron" being destroyed. You want to work, and it is wrong that you can not be hired.
A friend that has read you posts to the SJU.
Becky White
rawrew@wvadventures.net
Subject: saw your resume
From: Mediatix8@aol.com
Date: Tue, 1 Oct 2002 04:10:08 EDT
To: ysinger@worldnet.att.net
Hello. Sorry, I am not a potential employee, just a fellow psychology graduate who stumbled upon your website. You know, I was looking at your resume, and you prolly aren't getting interviews because of your job objective on your resume. It is too broad. Social service agencies don't want to hear anyhting at all about webpages, if the position is a human service position. Obviously, you just want a decent job, but you can't just say "I can do many things..." you have to be more specific. I personally have put the actual position in my objective, like "I desire a position as a residential counselor." It's sounds very simple, but that's just fine for objectives. Or you could say, for example, "i desire a position as a QMRP where I can use my blah blah skills. And, when you are applying for a research assistant position, just mention things that are related to research, like your computer knowledge...mention nothing about online teaching or anything. Don't have the word "multitasks" at all on your objective. You just have to make many different resumes, and different cover letters for EACH agency or company, specifically taylored to that organization.
Sorry if you knew this all ready... maybe that's just what you did for the website, to put it all in one.
Subject: Hi There - some job ideas
From: David djross33@ozemail.com
Date: Wed, 09 Oct 2002 18:39:30 +1000
To: ysinger@worldnet.att.net
Hi Yvonne
I had a look at your web site - neat.
You mentioned in your newsgroup post that you have had hassles obtaining employment. Obviousely this is a big prob for many people with a disability or impairment, tho, as I am an Aussie, I don't know much about the employment situation in the US.
Please forgive me if I state the obvious - you may have already explored all the options - but have you given a lot of thought to creating your own job?
As a long term worker in the disability field I found that creating employment was a necessity for many of our clients. If you are interested I would be happy to share some ideas and let you know some of the things that have worked for us.
Cheers and good wishes
David Ross
Subject: Re: A note of thanks and frustration
From: paradoxik1@aol.com (Paradoxik1)
Date: 11 Oct 2002 01:16:40 GMT
To: ysinger@worldnet.att.net
Newsgroups: alt.support.cerebral-palsy
You are not alone! My son who also has CP , whom I advocate intensely for, is also having difficulty locating a job even with Department of Rehabilitation help.
Keep the fight up!!
Subject: Hi yvonne!
From: "Christopher Baranski" cbb4104@earthlink.net
Date: Tue, 15 Oct 2002 23:27:23 -0400
To: ysinger@worldnet.att.net
Hello,
I am Chris and I live in Raleigh NC. I just met someone on line that has cerebral palsy and decided to check out the newsgroups to find out more about this condition. Your post is the 2nd one I read. Thanks for helping me understand what the "good fight" is about.
I have a very slight disability. Due to an auto accident 10 yrs ago, I suffered a traumatic brain injury. I still have to deal with meory loss and compensatory time management issues, but it is going well for me.
Thanks again!
Be proud of yourself!
Chris
Subject: Re: penpal
From: Tetta63@aol.com
Date: Wed, 16 Oct 2002 15:31:41 EDT
To: ysinger@worldnet.att.net
Yvonne,
I can see how very discouraged you must get. I know you feel your billiant mind is getting you nowhere. CP affects everyone differently. I am certainly not dumb, but there is no way that I could have acquired the education that you have. I had two yrs. of college and that was it. I never liked school and was always a very average student.I have always had a short attention span. And I attribute that to tiring so easily. I believe with all my heart if I could have been schooled at home in a one on one situation I might have done better in school and gone further too. But my parents did the very best they knew to do at the time. They both were teachers.
I would always be glad to hear anything else you care to share about yourself.
Betsy
Subject: Re: Fight the good fight
From: "Karen Lynn" whispersofhope@whispersofhope.com
Date: Fri, 18 Oct 2002 08:05:17 -0700
To: ysinger@worldnet.att.net
Yvonne,
I received your email just a little while ago. Mam, oh man oh man! You have really done your homework! My hat is off to you, kido! You have REALLY done your homework and networked! But,it ain't easy! I can feel your frustration all too well.
As so as I have a chance I will add your link to my site. I am so glad that you wrote and that we are becoming penpals:>) Maybe we will, no I am sure we will be able to inspire and help each other!
Until next time, sweetie, take care,
Kitten
Subject: Re: your heroic strugggle
From: Sean92996@aol.com
Date: Sat, 19 Oct 2002 15:59:22 EDT
To: ysinger@worldnet.att.net
How did I outsmart our "helpful jackasses"?
First I had grandparents and a physical therapist who cared about me. Second, I read everything I could find. Finally, I figured out that It is sometimes possible to convince these fools, you will do what they say, and go do something else.
Your absolutely right. We Cp folks have two swords hanging over us. Well, meaning people, who treat us like babies, and don't realize we need to function, and the other Which I have experienced Cruel people like my late stepfather, who will not give, legitimate help, because they want to force us to be Independent.
And let's not forget the therapeutic cadre, who want to evaluate us every five mins.
How do you take a bath? How do you brush your hair, and so on till you want to kill somebody.
You seem very brave.
Hoping to see from you soon
Sean Dineen
Subject: Response to website
From: B Rorie brorie1218@yahoo.com
Date: Thu, 24 Oct 2002 01:11:03 -0700 (PDT)
To: ysinger@worldnet.att.net
Hi Yvonne,
I am up late working (as usual) and came across your website. I am a speech pathologist in Los Angeles school district. I was crusing the web after having been working on getting information to an attorney going to due process with a client tommorrow. As I was doing this, I thought to myself that I ought to quit my job and see if I could freelance to advocacy attorneys to do research about various disorders and laws related to them to help them prepare for trial. When I read your website, I thought that you would be a great person to do that! There is so much out there that even those attorneys skilled in advocacy law can't keep up with. And paralegals (or whatever they're called) lack the familiarity with the ins and outs of disorders and conditions to do the job as effectively as someone trained in treating disorders. For example, my school district tells me I can't diagnose apraxia (although speech pathologists do this regularly) and that although it is different from, and requires different therapy than, articulation disorders, it doesn't matter. So, a speech therapist can (according to the district) dismiss a child for not making progress when the lack of progress is more related to a lack of skill on the therapist's part than it is a reflection of a lack of motivation on the student's part. I just got through sending her a bunch of information that she could use to address that issue effectively on the speech therapy level. You could not only do research, but also do those training sessions where you tell the witness how to and not to answer questions. This is an especially needed skill for families of children with disabilities and older people with disabilities who would testify for themselves. But, I don't think anyone ever thinks of that. After being an expert witness on several occassions (I hate it! They try to make you look so STUPID), I know the value of having someone help you prepare for testifying. Good luck.
P.s. I'm with you on some of these so called service organizations. lots of times they only serve themselves.
Subject:
Socialization for college students with disabilties....Amanda ALW910@aol.com
From: Alw910@aol.com
Date: Thu, 24 Oct 2002 11:27:49 EDT
To: ysinger@worldnet.att.net
Dear Yvonne Singer,
I am so glad I came across your wonderful website in a search. My name is Amanda Wallover and I am senior Special Education major at The College of New Jersey. My best friend also has a severe case of Cerebral Palsy and will be graduating this Spring. He has similar concerns about finding a job that will except him for the great work he can do despite his disability. Good luck to you.
I am writing because I am currently involved in a research project that I thought might interest you, which is why I was originally searching on the Internet. A group of Senior Special Education majors at TCNJ are researching how socialization and transitions have effected individuals with disabilities on our campus. I was looking for literature/articles related to the socialization portion and was wondering if you would have any input or idea where I could find them since you are such an expert in the field yourself! Please feel free to email me back, I would love to hear your perspective since you have been there.
Sincerely and Respectfuly yours, Amanda Wallover ALW910@aol.com
Subject: 42 ur old female w/cp
From: Pltwht@aol.com
Date: Thu, 24 Oct 2002 21:03:14 EDT
To: ysinger@worldnet.att.net
Grow up Yvonne. Your website is filled with anger & bitterness. I am confined to a wheelchair due to my cp, but have spent my life meeting people & being happy. Have a bachelor's degree, a husband of 16 years, & many friends,most of them able-bodied.
Recently I met an online friend in person. In researching about cp, he was unfortunate to come across you. He & I did meet, got along great & I was able to disspell any negative thoughts he had after he heard from you & browsed thru your website.
Your approach towards people is more of a disabilty than your cp. Drop the defensive attitude & you may be surprised at what happens!!!!!! Your attitude is disgusting..........that stupid 'questionaire' had me gagging.
People like you give the disabled community a bad stereotype. We're not owed anything & have to be realistic in what we strive for. You, my dear, are not realistic.
I have lived on my own for 20 years, attended public schools & colleges, been married 16 years ( oh, & yes, I have a degree also...just don't wear it like a badge).
Your disability does not give you the right to be so angry. Feel free to email me.........in fact, I look forward to discussing a few issues with you.
Mrs. Pat Townsend
PLTWHT@AOL.COM
Subject: hallo
From: "Sree Kumar" sreeyes57@hotmail.com
Date: Sun, 27 Oct 2002 10:35:48 +0000
To: ysinger@worldnet.att.net
Dear Friend,
Please tell me your name. Let me introduce myself as Sreekumar - you can call me as SREE. I got your address by searching the web - country Philippines. Before going further, let me put this frankly because of my experience. It is very very difficult to find a genuine and loving friend that too a woman friend in this world now a days. Of course every one will write for sometime and then one fine day they will stop writing. To tell you the truth - I had some friends - but they all stopped writing. In fact very recently I wrote to one or two friends- they wrote for about 3 - 4 times and they also stopped. I am again trying to find a woman friend by writing this to you.. I hope we will become thick friends and that our friendship will be there forever.
About myself say a good looking guy, working here in Muscat, Sultanate of Oman (a Gulf Country) in a leading airline/travel office in accounts dept, earning a very good salary with all other facilities like fully furnished flat etc. I live alone in my 2 bedroom flat here. . I am from the beautiful state known as Kerala in India. It is about 4.5 hours flying time from here to my hometown and I go to my hometown twice/thrice in a year. I have my own house there with lots of paddy fields etc. all my relations are there - but I keep a distance with some of my relations - as you know suppose say if a person in this world is well off with a decent job a good background - then even your so called relations will talk behind your back.
To me I value friendship very much. Between two good friends especially between a man and a woman if there is perfect understanding care affection and love then that friendship will last forever. They can discuss/write all their views, ideas, passions, fantasies and everything so openly under the sun to each other. As there is perfect understanding between them - even if they write anything and everything - there wont be any misunderstanding.
So I really hope that we will become friends and that our friendship will grow and grow and will be always there. I hope you will write to me and tell me everything about yourself. I also hope you will send me a photo of yours and I promise that I will also send you my photo after hearing from you.
Even if you don’t reply this mail of mine - I will never think ill of you as deep in my heart I will have the satisfaction that I tried very hard to find a woman friend in this world. My regards and thoughts go with this to you. My regards to your family also.
Loving regards
SREE
Subject: Dreams Come True
From: christina mitchell christinakaz@comcast.net
Date: Sun, 27 Oct 2002 18:30:01 -0500
To: ysinger@worldnet.att.net
Hi,
My name is Christina Kaczmarczyk, I read your story and I'm very touched. I was born with a facial defect called Humangieuima. It is a tumer that continues to grow on the lift side of the face after birth. I was the first child that was able to have the steriod that was able to bring the swelling down so they could operate. I had 22 operations and 6 reconstuctive operations. My parents took me from doctor to doctor until they could come up with the wright one to help me. I had my operations at Johns Hopkins Hospital. My last operation at the age of 13 and I know how peer pressure and peoples opions can distroy someone's dreams. I once had a dream to work with families and children with facial defects, but my dream was distoryed because I let my peers pressure me into a great depresstion the only way out of it was with alcohol and drugs and I did that for many years. I was in abusive relationships because I thought I didn't deserve better. I could not deal with my defect and I didn't know how to ask for help I ran. 13 I took my first drink and 20 I took my first drug, the alcohol just didn't do it for me. I took my last drink Feb 23 and my last drug Feb 23,2002. My Higher Power(God) has always put people and tools in my life and I was to blind to see it. I'm now going to college and I'm also a psychology major. ( not so good with English 101) But I have whats called life experience which is worth alot more than any text book. During this time in my life I hooked up with a man, that I love very much today we are both in recovery and he is the best husband that a woman can went. I have two beautiful healthy children 15 and 7. I never knew how blessed I was until I became sober. I' m also working on my dream I WILL have my dream come true and reach out to children with defects and other disorders and hopefully make a difference in theirs lives. If you know of anyone that may need my support in a matter of this nature please please call me @ ***-***-**** or e-mail @ christinakaz@comcast.net
Thank You,
Christina Kaczmarczyk
Subject: friendship
From: echere chukwu echerec@yahoo.co.uk
Date: Mon, 28 Oct 2002 14:53:56 +0000 (GMT)
To: ysinger@worldnet.att.net
Hi,
I believe you will not be offended to read from me.I got your address from the internet and decided to drop this few lines of letter to you .
My name is Chukwu but my friends calls me Chuks.I am understanding guy of 38years and easy going.I'm also very caring.And 5.8 and i hail from Ivory Coast in Africa but i do my business in Accra,Ghana where i live too(A Country in the west part of Africa).
I have a diploma in mass communication and Bible studies respectively.I know very well that quite a lot had been said about my part of the World but i make bold to say that i will prove those stories wrong if nagative and right if positive,if you give me the chance to be your friend.
My hobbies include Reading,Movies,Socializing and Traveling.Thanks and God bless.
Chuks
Subject: Hi
From: EJACP400@aol.com
Date: Mon, 4 Nov 2002 16:53:48 EST
To: ysinger@worldnet.att.net
Yvonne,
My name is Beth Anderson. Betsy Bean sent me your website. I also have CP. I am the youngest (55 next Jan) of 8. I live in the house where I grew up. My parents are gone now, but they were good people. I love my family and have lots of good memories.
I'll give you a quick run down. My CP is caused by lack of oxygen at birth, Mucous in my lungs. By the time I was 2 yrs old I wore braces. Wore them till I was 11 yrs old. I attended the A. Harry Moore (Laboratory ) School in Jersey City. Not a good time of life. Too much therapy and not enough class room time made things hard. When I was 20 yrs old the town of Kearny stopped paying for me to go. But, no problem to me. I was glad to be free of the controlling, arrogant attitude. I used what little I did learn and self-educated myself by reading. Keeping up with the news and asking questions. The one highlight in high school was working with a college student who got me into writing poetry. Used to be published in little poetry magazines, but now share my work in the poetry reading rooms online.
The extent of my handicap. I use a chair. Have a speech impediment, but am understood by those who want to know what I'm saying. Now, with age, I've developed arthritis and osteoporosis, so I move slow, but I get to where I'm going. I live on my own, but my sisters and a brother who lives 3 blocks up are a phone call away. I also have good neighbors, but I don't call for help very much. Once a month I have a girl come and give the house a good cleaning, then I keep things neat the other 3 weeks.
I have a lift on my house. But I don't go out alone. I attend church on Sundays (Episcopal) and on Weds my sister and I go to the mall and have lunch. Unless it's raining, or I have a Dr appt.
My interests. Love James Taylor's music. His voice and guitar relaxes me. He should do a relaxing CD for us spastics. LOL. I have lots of videos. Love to read. But am Online a lot, so don't read as much as I once did. Watch some tv at night. Daytime tv puts me into a coma.
I think that's the low down. Write to me if you'd like. Ask me anything. I have nothing to hide. Hope to hear from you soon.
Beth
ous in my lungs. I still have a bad habit of opening my mouth too soon. LOL.
Subject: World Bank Conference in Washington, D.C.
From: "David Smith" dasmith6@telus.net
Date: Wed, 6 Nov 2002 04:25:28 -0700
To: ysinger@worldnet.att.net
CC: "David A. Smith" alpha007@oanet.com
Dear Yvonne,
FYI
I am preparing to attend this conference on December 3, 2002. Should you still not have found work and be in the area or attending this conference if you leave a message with the registration desk for the conference where I can call or email you I maybe able to help.
Sincerely,
David Smith
Subject: my name is dan i live in ca.
From: Drbtall4u@aol.com
Date: Wed, 13 Nov 2002 16:15:37 EST
To: ysinger@worldnet.att.net
I think your a remarkable woman that is goal orientated and knows what she wants out of life.
I'm a 34 s/w/m that also has problems with my body. i was born breached with my cord around my neck 3 times. i was without oxygen for 20 min. s although i can walk, talk, and use all my limbs. i have problems in more of learning, sight, and joint problems.
we all have are differences. but what makes us so unique we all have inner thoughts on life. life is what we make of it and who we are. so despite what is on the outside it the inside that realy matters.
i like you for your mind and would like to know more about it. so there for i would like to be a friend if that is ok with you?
Dan
Subject: linked up to yours via Steve Harper's
From: Candace Kukino ckukino@yahoo.com
Date: Wed, 13 Nov 2002 20:36:51 -0800 (PST)
To: ysinger@worldnet.att.net
Hi Yvonne,
I'm taking an AAC class at UW (Seattle) and Steve Harper is being kind enough to field our questions re: AAC, etc.
I had to email you because I was so glad that he has you linked up. You are hilarious, and I was laughing in the library loud - believe me, I can't recall a time when I actually enjoyed visiting someone's website like I did with yours. It is a big relief to be able to connect to what a person has to say, and actually get something out of it, like I did with yours.
I appreciate your candor, feisty personality and humor - also making me aware of the wider spectrum of what you have to deal with - the sickos.
I'll tell you about me now, since that would be fair. My name is Candace Kukino, I'm 40, 3rd generation Japanese-American, (grandparents came from Japan to Hawaii, where I and my parents were born). I have been living in Seattle since 1994, when I moved from So. Cal. (Irvine) after living there for about 10 years. It was like living in Samesville - ever seen the Stepford Wives? It was like that. Everyone was like mannequins, and I felt that I was going to soon turn permanently into one of them, so I moved here to Seattle. Coming from Hawaii, and then So. Cal., I never thought to ask if it snowed here. I found out as I was moving here in the UHaul that got stalled at a podunk service station/convenience store in the middle of Shasta, where the only people around were lonely drunk men. You can understand that was not the kind of moving experience I thought I was going to have.
There is a long story between then and now, but now I am in my 2nd quarter of a 2-year post-bacc. (got a degree earlier in animal technology from Univ. of Hawaii) program in Speech Path. and Hearing Sciences, and from now until two years from now, between trying not to lose whatever sanity I have left, I will be making a decision to apply to grad. school for either audiology or speech path.
Oh yeah, I'm also trying to eat ecologically correct, and I don't buy Proctor and Gamble products because they keep doing unnecessary animal testing. I protest circuses, and praise people who say what's on their mind, and single payer insurance.
So, that's me in a very small nutshell. Thanks again for your website which must have taken eons to do (I have no idea how to do that stuff) and I hope someone hires you soon because they are missing out on one damn sharp person!
take care, Candace
Subject: Becoming a Psychologist
From: Sylvana Rodrigue Rodrigue@ABCENTRE.Org
Date: Fri, 22 Nov 2002 13:37:29 -0600
To: "'ysinger@worldnet.att.net'" ysinger@worldnet.att.net
I read your web site and I hope that there will be a way for you to become a psychologist. Not only for young disabled people but for disabled people. There are three categories that psychologists do no want to touch. 1. The Disabled, 2 Addictions and 3 Seniors because there is little success. But then what is success. I myself am a disabled Social Worker who helps disabled people in my city find work. I don't know of or can find any therapist that is willing to work with the disabled to help them deal with the issues that are unique to their situation. I loved reading your story.
Subject: Hello
From: "Linda DuMoulin" eaglehawke@msn.com
Date: Sat, 23 Nov 2002 15:20:45 -0800
To: ysinger@worldnet.att.net
Dear Yvonne:
I looked at your web site after I received an email from you in my Walden U mailbox and was so impressed. I was working on my PhD at Walden, but had to take a break due to illness, and was so touched by your wonderful writings. How beautiful they are and you are indeed gifted!!! I loved reading your work and hail you with a huge BRAVO for your courage.
My plight is having fibromyalgia, an auto-immune disease, that leaves me with a number of other irksome problems and wanting to sleep over 12 hrs a day. Unfortunately, with a weak immune system, one falls plague to everything else floating around out there. For me, living in the Pacific Northwest is fantastic, but unbearable in Spring/Summer when the Alder and Birch trees flare up allergies. I usually sleep sitting up during those times, and my energy is so low during winter months. My problem is that people look at me and think I'm okay -- as my mouth and brain work fine. Since I don't LOOK like I have disabilities, folks tend to think maybe I'm "lazy" sleeping all the time and the other trash that goes along with false appearances. I know that you are more than familiar with the scenario. So my heart and soul goes out to you for your courageous work and efforts. I fear you must write far better than I, and far outweigh my meager computer skills, so bear with me.
I just watched for the third time the story of Gabrielle Brenner, the brilliant lady of Mexican descent who had the same physical problems as you, and her wonderful courage. She, too, was exceptionally bright, like you, and struggled against the primitive Mexican social system and their biases. I cried at her attempt to find a boyfriend and her pain reflected in her beautiful poetry. She had one advantage -- she had money, as she came from a wealthy family. For those of us with limited incomes, life can indeed be hell with its unfairness and narrow limitations. I'm sure I'm not telling you anything new.
I used to be a helicopter test pilot in the Army and was very active. I retired, then became ill, and my whole life had to change. I've accepted it, as I see others so much worse than I, and am grateful for what I do have. I won't deny that I sometimes get exasperated at what I cannot do any longer. Sound familiar?
My purpose in writing was not to dwell on pity, but to thank you for your wonderful contributions and to send you mounds of support and courage from an admirer. Your plight is so much worse than mine and you are coping brilliantly, although I know there are constantly barriers for you to climb (and idiots to educate.) People like you will do so much to educate the public and it takes great courage to take this to task. I wish you so much luck and success with your endeavors, and know that you are making a mark for many others to follow.
Bless you with love and prayers for all that you are doing,
Warm wishes,
Linda DuMoulin
Subject: Enjoyed your site - good list of links!
From: "Maricarmen Gonzalez" mcg@love.org
Date: Mon, 25 Nov 2002 08:44:34 -0800
To: ysinger@worldnet.att.net
Hello Yvonne
I recently came across your site while web surfing and enjoyed it very much. - well done!
I saw that you have a list of dating sites on your links page.
You may be interested in a site I created called Love.Org. It's a totally free dating site, even to send and receive messages. It's a nice site, with large photos, ZIP code lookup, anonymous forwarding of e-mail, and even a few features other sites don't have, like customizable "agent" searching.
If you like the site and consider it worthy of inclusion in your list of dating sites, I'd be honored. If you do link to us, you're welcome use the following code:
Love.Org - Totally Free Personals
Dating
Personals dating service for singles looking for love and romance. Totally free to post personal ads, search, send and receive messages.
I'm building a comprehensive list of personal sites that I've found to be interesting, and I'd like to include your site too. If you'd like a link, just make sure to send the URL and the link text you'd like me to use.
Thanks very much!
Christopher Alan
San Diego
Subject: A "would-be Email pal"
From: "Wilda Dodder" wrd1940@chartermi.net
Date: Mon, 25 Nov 2002 23:10:07 -0500
To: ysinger@worldnet.att.net
Hi, my name is Wilda and I have a daughter with a mild case of CP. Valerie is 33 now and a substitute teacher for Head Start. It sounds like you have a more sever case than she does, but she has been through some of what you talked about, and felt alienated. She finally grew up and found there was life after high school, and it does get better. She married and divorced and is now raising her 8 year old son as a single parent. She knows that life is a struggle and always an up hill climb, but she is use to working really hard for everything, things other people take for granted. As her Mom, I never get over the "feeling guilty" that I somehow caused all of her problems, so it's just something I live with. We have always encouraged her to be independent and she works at that every day. She is just such a sweet, giving person, it's hard not to like her and once you meet her, you probably won't forget her.
We live near Flint, Michigan. I would like to hear from you if you have the time or the interest.
Sincerely, Wilda
Subject: NEVER QUIT
From: Rabbonaii@aol.com
Date: Fri, 29 Nov 2002 08:03:41 EST
To: ysinger@worldnet.att.net
I too graduated this past May 2002 and am looking at Walden Uni to do a PhD in Psychology. What do you think of their on line program ?
Rehabilitation Psychology at Indiana University is something you MUST look into if you haven't already...DO IT
Michael Phelps
Rabbonaii@aol.com
Your Brother on your Father's side.
And I will bless them that bless thee, and curse him that curseth thee: and in thee shall all families of the earth be blessed. Gen 12:3
Subject: Re: Hi Joanna
From: JoBryn13@aol.com
Date: Sat, 30 Nov 2002 14:32:00 EST
To: ysinger@worldnet.att.net
I L9VE YOUR SITE. I HAVE DYSTONIA, BUT DYSTONIA DOESN'T HAVE ME. I HAVE COME ALONG WAY TO GET WHERE I AM TODAY. IT'S VERY HARD WHEN U CAN'T SPEAK AND USE A DEVICE, BECAUSE PEOPLE ASSUME U CAN'T HEAR. I HAVE PERFECT HEARING, BUT IT'S THE STUPID PEOPLE THAT ASSUME. I AM 30 BUT EASILY LOOK 14.
I ENJOY WRITING SHORT STORIES ABOUT THINGS THAT HAD AN EFFECT ON MY LIFE OR SOMETHING I ENJOYED.
LET ME KNOW WHEN U R COMING BACK, CAUSE I'LL BRING IN SOME OF MY STORIES TO SHOW U.
JO
Subject: Holiday Greetings
From: "Michael Kempton Jones" kemptonjones@sasktel.net
Date: Wed, 25 Dec 2002 03:20:32 -0600
To: ysinger@worldnet.att.net
Hello Yvonne,
Christmas Eve and here I am writing to someone I've never met...never met, but for goodness sake, after speed-reading as much of your magnificent website as a fellow of my age (65) can...I think through you, Yvonne, I've finally met my match. I've always loved to write, but it usually takes something to light my flame...and then, watch my smoke. I'd love to tell you about my life, and if you're interested, one day I will. For now, let me explain just a "little" as an introduction:
I found your website while surfing with my new High Speed connection. I visited the City of Ottawa website and somehow from there, found your link, Yvonne, while checking out accessibility items with my wife's needs in mind, and the possibility of a tour next year.
You did ask for e-mail, but why am I writing to you on Christmas Eve? My son Robin Michael was diagnosed with epilepsy in infancy, later as "moderately retarded" and in the late '80's with cerebral palsy. Robin died suddenly at Kingston, Ontario on June 13th, 2002.
He would have celebrated his 38th birthday on December 15th. He died alone in a bathtub at a group home in Kingston. His funeral was on Father's Day and he was cremated before I could arrive to attend his services.
On December 24th Christmas Eve 2002, through mail from the Registrar General of Ontario, I learned that Robin's death has been determined after criminal investigation by Kingston Police and finally, by forensic study at Toronto, to be of natural cause...Sudden Death Related to Epilepsy. Robin's daily meds included Haldol, Cogentin, Topamax and, Divalproex. The Coroner's report states he had received an extra dose of Haldol earlier in the day because he was "agitated" (which is to say, his persistent efforts to run away back home since November 4th, 1994, the day he was removed from my custody as sole caregiver by court order in his mother's favour in a never-to-be-resolved custody dispute). Robin spent the next 9 months in Prince Albert Mental Health Centre (read "Insane Asylum").
He was discharged in July 1995 and placed in a group home at Porcupine Plain, Saskatchewan, 250 miles from home. He lived there until May 2000 and we were allowed access every 8 weeks. In May 2000, he was flown to Ontario for one month's vacation with his sisters and mother. On May 10th, after disclosing to his sister he'd been raped repeatedly by his male group home caregiver, his mother committed him to a Kingston, Ontario psychiatric facility where he remained another 9 months. During that period, I was dismayed to learn he'd been given a Haldol injection to pacify him. There was nothing I could do to help him except to stay in touch by phone and mail. He was discharged in March 2001 to a Kingston group home.
On June 13th, 2002, his caregiver stated she had left him, an epileptic, alone in the bathtub about 6:15 pm, BUT had checked on him 15 minutes later. When found to be unresponsive, he was sitting up-right, his head above water, his eyes open and fixed.
On September 28th, Robin's cremains were sealed into a marble pedestal at Rideau Memorial Gardens on Montreal, West Island, not far from his mother's residence.
Eva, my present wife and love of my life since 1994, is hearing impaired in both ears and uses 2 hearing aids. She has spinal cord injury since two major motor vehicle accidents (head-on collision with a drunken driver at the wheel of a semi-truck in the Rocky Mountains...9 months in hospital...and as a hit & run victim 7 years later...another 9 months in a psych' ward).
Eva was born with a (left) club foot. In a previous marriage, her back was burned by her husband with a hot iron and she had skin grafts. She was raped at knifepoint before her first marriage and my eldest step daughter is the product of that assault.
Eva's right ankle injured in a fall on ice, was fuzed in 1995. Her right knee joint was replaced January 28, 2000. The surgery was not successful, leaving her to suffer chronic pain. Both knees would have been replaced but because of a dislocated left shoulder, she couldn't support herself on a walker and so the left knee was not replaced. Her shoulder was dislocated a few months before we met in 1994. Raped by 3 men during 48 hours of hell in a home invasion, she'd been tied spread-eagle on her bed. Eva dislocated her own shoulder struggling to release herself after the intruders left.
On a surgical waiting list for shoulder replacement since more than 2 years, Eva needs OXYCONTIN plus TYLENOL Extra daily. She is still able to walk with an unsteady gait, but not as well as she did before knee surgery. She was given her first electric scooter by Legs Unlimited, a charitable organization, in 1996. This month, when she took her scooter in for repairs, she received a brand new Rascal scooter, Candy Apple Red with headlight, turn signals and hazard lights. It's a beauty. Through her ongoing local promotion of Legs Unlimited's services, this was her reward for the sale of 14 scooters this year alone. We keep a tdd/tty telephone unit on standby here at home, but Eva can and does use the regular phone.
BTW, my name is Michael. On the Internet, I prefer to identify myself as "kempton" or "kempton jones", the latter being our family name. Friends call me "Mike". Others may call me worse, but Eva calls me anything she likes (:-).
In July 2001, I entered hospital(s) and was diagnosed with anemia and kidney failure. In August, I heard another diagnosis: Salmonella Heidelberg food poisoning. In and out of hospital all winter....and so, we never got to visit my son Robin at Kingston as planned. The last time we saw Robin was immediately before Eva's knee replacement in January 2000.
Our home is at Spiritwood, a town of 1,000+ souls with an agricultural economy (like most of this province) in north central Saskatchewan, Canada, located 85 miles west of the City of Prince Albert on Highway #3 and probably 125 miles northwest of Saskatoon, Saskatchewan. This late evening our temperature is -12 celsius (+10 farenheit), the wind is calm and the trees are all covered by heavy hoar frost...quite pretty...Silent Night. Back east, some of my friends are celebrating Channukah, I guess, but in this rural community, most everyone including our Cree Indian First Nations neighbours, celebrate the birth of the Christ Child.
Our foster son, Dennis, was Cree. Dennis died suddenly here at Spiritwood in September 2002 at age 42. Attending his funeral at Witchekan Lake Indian Reserve on September 28th, the same day Robin's cremains were interred at Montreal, John George, a Cree Elder said to me, "I just learned that your son died, Mike. I am sorry. We all know that if they'd left him with you, he'd still be alive today."
I was born at Montreal, the oldest of 4 kids, university drop-out, previously married for 22 years, father of 4 beautiful children, Susan, Catherine, Robin (my son) and Heather. I speak English and French and a little of several other languages. Most of my adult employment was as a Sales Engineer and I enjoyed working on projects in pulp & paper, mining & metallurgy, pharmaceutical & hospitals, nuclear establishments, aviation, marine and industrial applications.
Like my daddy, I am a Freemason. During my teen years, I had summer employment with Special Services Division - Canadian Marconi Company on the DEWline, a Cold War defence project to construct radar sites across the high arctic. The first year, I celebrated my 15th birthday at Frobisher Bay, now known as Iqaluit, Nunavut, and from that base, spent many hours flying to & from various sites on Baffin Island. The following May, I returned north to Hall Beach, 250 miles north of the Arctic Circle, located on Melville Peninsula on Foxe Basin along the extreme northwest coast of Hudson Bay. I think I remained there until November that year. 65-miles north of Hall Beach was a tiny Eskimo settlement called Igloolik. Never in my wildest dreams did I ever expect that Igloolik would one day become my home...until it did, in September 1980...and with your permission, some other time, Yvonne, I'll tell you the rest of my story.
Yvonne, thank you so much for this opportunity to rap with someone I think may know where I'm coming from. I really needed someone like yourself to talk with tonight. I guess there are Angels Around Us after all.
If you like, please visit our website at http://groups.msn.com/EvaMichaelWindflowerGoreCanada. Robin's pictures are there and ours are too. By the way, have you ever applied for employment with the Shriners? You may find their website interesting and I expect you may know something about the wonderful work they do for and with children. If you haven't done so, I suggest you also visit the Scottish Rite Charitable Foundation website.
And finally Yvonne, I am happily married as you already know, and I'm not a great dancer, but I think with Eva's consent, I'm probably still strong enough, 65 and kidney failure be damned, to hold you in my arms for a little ballroom dancing!
Thanks again for allowing me to share my Christmas Eve with you, Yvonne.
With my very best wishes,
Michael
Subject: Walden's PhD program in clinical psychology
From: Blackwelder5480@aol.com
Date: Mon, 30 Dec 2002 02:58:38 EST
To: ysinger@worldnet.att.net
I have already made application for this particular program but am worried about the courses in Statistics, etc. Any suggestions as to what I can do to "make it through" these few courses. The remaining courses should be a breeze.
I look foreward to hearing from you.
Thanks,
Edward Blackwelder
Subject: Great Web Site & Resource Links!
From: Matt-View Point Mobility Mwwermer@bellsouth.net
Date: Fri, 10 Jan 2003 09:35:54 -0600
To: ysinger@worldnet.att.net
You Have A Great Site With Helpful Information, Resources & Links! I would like to suggest a link for your site of a product that many visitors to your site may have an interest in. http://www.viewpointmobility.com is for our company named View Point Mobility and we manufacture the "VISION" rear entrance lowered floor wheelchair minivan conversion.
Take a look at the site and I think you will agree that the visitors to your site may find the information very useful.
Thank you.
Matt Wermer
(C-4 Quad)
VIEW POINT MOBILITY, L.L.C.
1815 PALMER ST.
KALAMAZOO, MI 49001
877-368-6022
info@viewpointmobility.com
Subject: Hello
From: "michelle M organ" michelle-organ@lycos.com
Date: Thu, 23 Jan 2003 08:56:04 -0800
To: "ysinger@worldnet.att.net" ysinger@worldnet.att.net
Hey Yvonne!!!
My name is Michelle Organ I'm 22 and I live in Ireland. I Like u have cerebral palsy. Moderate have no balace they call it the spastic variety.
I'm currenly surfing the net trying to find people to contact in the same situation as myself!!! all I get is websites giving a negative side of things if u know what I Mean!!!!!! sick of it!
Your website is just what i was looking for!
I am currently doing my degree in marketing here in Ireland and I love listening to Celine dion!!!
Hope to hear from you soon
Michelle
Subject: Interested in a Link Exchange?
From: "Ian Holloway" drgreat@majolee.info
Date: Sat, 25 Jan 2003 20:21:36 +0530
To: ysinger@worldnet.att.net
Hi,
My name is Ian Holloway. I have visited your site and I feel that we can help each other increase our search engine ranking by linking to each other. The more traffic for you..the more traffic for me. Why not?
We run a site called DrDating.com which amongst other things has a directory of personals, dating and singles related web sites. As your site is targeted at this market then it should be in our directory.
To add your site simply go to http://www.drdating.com/cgi-bin/search/add_url.cgi and complete the form. Once you have submitted the form you will be shown a selection of banners or text links you can use to link back to us.
We will review all submissions within 48 hours and providing you have added a link back to us, your site could be in our directory and taking advantage of some of the 1500-2500 visitors we get every day within a couple of days.
We look forward to hearing from you.
Ian Holloway
Admin Manager
http://www.DrDating.com/
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Subject: A suggestion
From: oritend@zahav.net.il
Date: Tue, 28 Jan 2003 17:07:26 +0800
To: ysinger@worldnet.att.net
Hi,
My name is Ori Tend and I wanted to introduce you to a new site I've launched recently: http://www.FetchBook.Info/.
It's a free service, allowing you to easily compare prices of any book among 60 bookstores, and find a price which is 30% - 80% off the market list price (Here's a sample comparison, where you can see that it saves so much for any book: http://www.FetchBook.Info/0670030376.html).
I thought that this site may be interesting to you, so I've sent you this email.
If you think it's appropriate, feel free to link to it (you can also add the book price comparison feature directly to your site). In addition, I'm striving to improve the site and make it better, so if you have any feedback about it, please feel free to send it!
I hope you liked my site, if not - sorry for the trouble.
Thanks,
Ori.
Subject: Yes, I do exist
From: John TenPas John.TenPas@dhr.state.ia.us
Date: Thu, 30 Jan 2003 08:45:55 -0600
To: "'ysinger@worldnet.att.net'" ysinger@worldnet.att.net
Yvonne:
I enjoyed reading your article. As individual with cerebral palsy, I could relate to many of the situations you wrote about in your article during my days in college. I now work as a Disability Consultant for the State of Iowa (corn country) for the past 18 years. I just want to wish you the very best in your career.
John TenPas
John H. TenPas
Disability Consultant
Division of Persons with Disabilities
515/281-5969
515/242-6119 (FAX)
1-888-219-0471
john.tenpas@dhr.state.ia.us
http://www.state.ia.us/dhr/pd
"Employers lack confidence in their ability to work with people with
disabilities. They don't necessarily lack confidence in the person's ability to do the job." Richard Pimentel, 2002
Subject: Re: Volunteer
From: Tina Trott tina.trott@mscare.org
Date: Fri, 31 Jan 2003 15:18:04 -0500
To: ysinger@worldnet.att.net
Hi Yvonne,
Boy, you are enthusiastic! I was looking at your personal website and some of the others. Kudos!
Right now I do not have anything that needs to be proofread. Come March and April, I will be inundated with proofreading. I'd like to contact you then. In the meantime, if anything else comes up, I will email you.
Thanks again. Have a great weekend! Tina
From: WayneRutschke@aol.com
Date: Sat, 1 Feb 2003 21:48:58 EST
Subject: (no subject)
To: y_singer@yahoo.com
I appreciate the opportunity to see your web page.
Thanks
Wayne
Subject: I would like to talk with you
From: "Svetlic, Wieland & Wemhoff, L.C." swwlaw@swbell.net
Date: Fri, 07 Feb 2003 17:15:45 -0600
To: ysinger@worldnet.att.net
Hello Ms. Singer. I am the mother of an 18 year old boy with Cerebral Palsy and like you, he is in a power wheelchair. His dream has ALWAYS been to go to college. He is currently a 12th grade student in Kansas City Missouri, public school I might add. I am wondering if you have any information for me related to help available to him should he decide to live on campus. If you have any info to share I would be most appreciative. You may reach me at tracelynn@msn.com or the address from which this is coming.
Thank you so much and God Bless.
Tracy L. Siehndel
Legal Assistant
Svetlic & Wemhoff, L.C.
816/452-4533
816/452-8371 (fax)
swwlaw@swbell.net
Subject: Hi:)
From: "lame cherry" lamecherry@hotmail.com
Date: Tue, 18 Feb 2003 20:40:44 +0000
To: ysinger@worldnet.att.net
Hi Yvonne,
I thought in replying to this letter I would answer about me in comparison to the things you wrote....sort of making it in a survey so we could both learn about each other.
I never get offended by what people ask questions on.....I only am offended by liars or cruel people...and I guess those who think themselves better than others. So you can always ask me any question as I am an open book.
Oh and thank you for the pic of you...is always nice to see who I have the pleasure of corresponding with....and congratulations on your graduation.
If I could though when I read about your statement that you would have a job is someone would give you a chance.....it reminded me of a line in a movie called McClintock. John Wayne had just hired a kid to work for him after the kid begged him. The kid got mad and took a swing at John....John said, "I been punched for alot of things, but never for hiring someone."
The kid said replied that he was angry because he never begged before and didn't like someone GIVING him a job.
John asked him if he meant to give him an honest days work for an honest days pay......the kid said YES SIR.......John replied, "Well I ain't giving you nothing then.....you are earning it."
What I am trying to say Yvonne is that maybe a change of tactics is in order. There are a lot of laws on the books about hiring people...and to be frank, you have alot of power in being a minority, a woman and overcoming a disability.
Perhaps, contacting your state representative or senator with documentation of businesses not following federal guidelines might just start opening some doors.
Perhaps, instead of wanting a job.....you might consider starting your own newsletter for distribution......a website.....non profits are very good at opening people's eyes....you could be the boss and your own spokeswoman in doing public speaking (and even if your voice does not work....there are comp programs as you know....and I know you have a voice in you, because I have read your words and been on your web pages.) You are very gifted and bright.
I did not mean to stick my nose in......but I have been told NO NO NO my entire life......and I simply stopped listening to those idiots who told me NO...and kept at it until I found someone who was bright enough to say YES.......being a boss is the way to go....and you are a self starter and have shown all you have overcome.....you have what it takes.
Always, Jess
Subject: Thank you
From: Dzd2cnfsd2@aol.com
Date: Fri, 21 Feb 2003 03:48:45 EST
To: ysinger@worldnet.att.net
Dear Yvonne,
I was exploring the web and discovered your site. I teach 4th grade in Mt. Laurel, New Jersey. Every year I begin with a unit on understanding people's differences. Reading your story and knowing of the site where I discovered it will help me provide my students with more resources when I teach this unit. I hope over the number of years that I have started off with this unit that I have at least reached some children and helped them understand that "the disabled are people too!". I will definitely share your site, as well as the others discovered with yours, with my students. However, I will not wait until the beginning of next year to do this. I plan to have them start tomorrow afternoon when we use the computer lab. Thank you again and I wish you success in your future.
Diane Graham
Parkway School
Mt. Laurel, NJ
Subject: permanently wobbly
From: "Gabriel Pepper" pepper.pepper@ntlworld.com
Date: Sat, 22 Feb 2003 13:05:21 -0000
To: ysinger@worldnet.att.net>
Dear Yvonne,
Your advert stood out in Physically Challenged website.
I am Gabriel - aged 31, and my better half is Penny. She is a wheelchair user while I use a white cane. While I am always extra busy, it is true that I have no intellectual focus. I have a degree in Medieval Archaeology, which I also did a PhD in. This was entitled: From Defence to Urbanism, so as you can guess, pretty academic. From when I was a small boy, archaeology was a passion. I did most of my fieldwork in Compton Bassett, Wiltshire, UK, a beautiful place. Do you have any experience of archaeology?
Medically I have a history of brain tumours. I acquired my impairments in 1996. My third tumour was really mad, and eventually frozen by the amazing technique Gamma Knife Radiosurgery on 25-01-02! I have a number of impairments. I am partially sighted with internuclea ophthalmolplaegia - very rare. I use the longest white cane available, although I am 5ft5. I am permanently wobbly, and I have dysphasia and disarthria which affect my speech.
Penny has JCA. Currently she is writing a book commissioned by London Arts, basically 8 stories on disability sexuality. Her talent is top notch. Her impairments which are chronic play a major part of our available time.
I have a tortuous family.
We live in a Woodford, North East London, our house lies in both Waltham Forest and Redbridge London Boroughs. This has caused confusion. A big part of our life is our independent living scheme, which I am the most active member of. I run the peer support group in Redbridge. Recently we have had a poor patch, when our group folded. The group may have to find a new leader soon, because we're in transition. We are politicised and at constant loggerheads with Redbridge, which has a culture of sour relationships with crips. Currently I have been interviewing for a new scheme co-ordinator as I'm on the panel.
Anyway. I hope I'm not too boring and you'll consider being my pen-pal?
Ciao
Love
Gabriel Pepper
Subject: Hi Yvonne
From: "Alan Worland" alanworland@ozforces.com.au
Date: Sun, 23 Feb 2003 17:37:34 +1100
To: ysinger@worldnet.att.net
Hi Yvonne
Just came across your note on the net. Thought I'd write you a note and say "Hi". I'm Alan, 53, in Australia. Looking forward to hearing from you.
God bless
Alan
Subject: RE: hi
From: "Kevin Rudolph" turbokev@insightbb.com
Date: Thu, 27 Feb 2003 18:16:15 -0500
To: ysinger@worldnet.att.net
Hi Yvonne, I just visited your website and I am astonished by your numerous accomplishments. I admire your attitude. By the way, I am Kevin. Do you instant message?
From: "bob_treiber" bob_treiber@netzero.net
To: ysinger@WaldenU.EDU
Subject: Fw: Thanks for a Great Web Site
Date: Mon, 3 Mar 2003 11:57:40 -0600
Hi Yvonne,
Was so grateful that my wife Karin Treiber passed on the message about your work designing two web sites: (1) Monmouth County Office on Disabilities Web Site - and (2) your personal web site. I had mentioned to my wife what a special treat it was have this energetic lady, who happened to have MS, in a recent Lenten forum at our parish. Plan on passing on your site to Lisa and anyone else in our class who would like to expand their horizons into the world of the handicapped.
Just started going through your site...my what a lot of work you have put into it. Thanks for all the effort. Hope you get lots of exposure. Nice job.
Personally, your page is going to help me be more at ease in relating to others with any disabilities. BTW, you'll like this personal insight - Lisa was in a wheel chair and speaking was a little difficult but she was not going to let her handicap determine her participation in our small group, she jumped in, had us laughing and generally made me ask myself who was more handicapped, her or us.
Again, nice job.
Bob
To: ysinger@waldenu.edu
Subject: You are helping many people!
From: ktreiber@WaldenU.EDU
Date: Mon, 3 Mar 2003 16:24:36 -0600
Dear Yvonne,
Thank you for sharing your wonderful message today about the courage and stamina that persons with disabilities show. Your message came to the Walden bulletin board and then to my mailbox. I shared your message with my husband because he is now serving as the facilitator for a group at our church and has a person with a disability in his group. Your message is a great encouragement to many and your website is a great help to many who experience difficulties in daily life. My husband was very excited about the story in your message and very impressed with your website. I believe he has sent you a message with his personal appreciation.
Walden is very fortunate that you are one of our students!
Karin Treiber
Assistant Dean
Undergraduate Student Experience
School of Management
Walden University
Subject: Web Pages
From: janet conklin ncon932295@comcast.net
Date: Fri, 14 Mar 2003 11:23:08 -0500 (Eastern Standard Time)
To: ysinger@worldnet.att.net
Hi Yvonne, I am on the SJU list for Post Polio, I often read of you wanting people to add you to their web pages and have always wanted a web page. I became disabled in 1984 with manic depression and post polio started in '88 or '89. I am fortunate as I am not a severe case of PPS as those on the SJU list. I do however have a full leg brace, a 1 1/2 inch lift on my left shoe. I have lower back and hip pain and am prone to falling. I use a power chair all the time in my home to save energy, prevent falling and to ease back and hip pain. I use a scooter for long distance walking outside my home and for small stores and church I just use a can or walker and a loving husband to holds on to me to make sure I tread tenderly. He is also recently disabled with degenerative disc disease and arthritis of the back and neck. So we are now a disabled couple with many yrs to enjoy an extended retirement together. I am 63 and he is 54. Are you offering to make web pages for individuals, how do I start one and I do a lot of crafts, especially counted cross stitch and I am starting to make photo to fabric pictures for T shirts or a group of individual pictures put into small quilts. I would love country art graphics. Can you help me and advise me of the price. I'm so happy you are now reaching some of your goals that you have worked so hard for. Thanks, Janet Conklin ncon932295@comcast.net
Subject: hi
From: Mario Persona contato@mariopersona.com.br
Date: Sun, 16 Mar 2003 06:07:10 -0300
To: ysinger@worldnet.att.net
Hi,
I included a link to your site in my son's diary at http://www.pedros.blogspot.com/
Mario Persona d
Subject: ur post
From: Raymond Miller miller.2925@osu.edu
Date: Mon, 17 Mar 2003 08:20:13 -0500
To: ysinger@worldnet.att.net
Yvonne,
Thanks for posting your site to the OurKids page. My connection with that page is a daughter who has learning and socialization problems stemming from a brain injury. Additionally I am rather hard of hearing, near 75% loss both ears. I suppose that makes me "disabled" though I resist the label, moreso any limitations people try to place on me and on my daughter. However, I do not want to dwell on any negatives. The reason for my letter is to ask your permission to post your site on the Office of Disabilities site here at Ohio State University where I work, manage the multimedia center, and am hoping to complete a masters degree in disability counseling within a reasonable amount of time. Thanks again for your post and keep up the good work.
FR (Skip) Miller
Subject:Re: Keeping in touch
From: "debbie" dm8@roman.net
Date: Mon, 17 Mar 2003 19:05:13 -0500
To: ysinger@worldnet.att.net
Good luck Yvonne
debbie m.
http://www.angelfire.com/ga2/angels1/
Subject: [berkeley-disabled] Re: Yvonne Singer
From: "Mary Fowler" mmf111@msn.com
Date: Sun, 23 Mar 2003 11:46:09 -0800
To: berkeley-disabled@yahoogroups.com
Yvonne,
Yes, isn't it great living in the 21st century? ...except for certain important issues. :( :( :(
Jim was born in 1938. He never was allowed to go to regular grammar or high school. His 1st public education was a couple classes at the community college in Bakersfield.
But, guess who paved the way so you & many others could get off the block, into stores, businesses, schools, colleges, etc. ? Jim and Hale & a few others are still around to remember those times.
I've had brain injury, so I'd have a really hard time learning html. I did work on machine code when I was working on the Fortran compiler at Control Data Corporation in Sunnyvale in the mid-1970s. But I can't do complicated work like that any more. So I use geocities to make web sites. http://www.geocities.com/mmf11111/pwhoa.html
You can reach some pages related to Jim through the pwhoa pages. I also use http://groups.yahoo.com/, taking advantage of links, database, photos, etc. and http://classmates.com/ Using GROUPS; INTEREST GROUPS; Collectibles also including photos
I also worked on 2-dimensional hydrodymanic continuum mechanics codes at Physics International. We could hardly wait for supercomputers to be invented so we could move our codes (programs) to computers with adequate space and speed. I got to work on the Cray at NASA Ames. History note... before they were called "programs", they were called "codes".
Glad you have the opportunity to do everything you can.
Mary
Please don't stand in the curb cuts.
Mary Marshall Fowler & Jim Gonsalves, Alameda, CA, US
Subject: Greetings, I also have CP
From: Mjh85direc@aol.com
Date: Wed, 26 Mar 2003 17:31:36 EST
To: ysinger@worldnet.att.net
My name is Michael Haider. I am 18 years old and I have Cerebral Palsy. I stumbled upon your article "I do exsist" on nod.org and was blown away. I totally understand your feelings. Upon visting your website, I was once again blown away. Last summer I had the mixed blessing of a UCP experence. What I want to do is begin a corrspondence--I think I could use your guideance as am about attend Edidnboro in the fall. I going to tell people about your website and build up the rally cry.
cheers,
Michael J. Haider
Subject: Let's talk
From: Bert Kormann bkormann@comcast.net
Date: Wed, 02 Apr 2003 20:07:52 -0500
To: ysinger@worldnet.att.net
Yvonne, I recently posted the message below in several newsgroups. You have done a great jon on the internet, and its needed there too, but I still think TV is the way to go, because, most people cannot afford internet and pc's! Everyone has TV. So if you'd like to talk about my idea, let me know. It would be great to get to know you.
Hi all. I am assuming that you are from this area. For the past year I have been "thoughtful" and exploring about starting new cable programming that focuses on people with disabilities. I am posting to this geographic group specifically because I have finally spoken to a person in charge of the local access cable programming here.
My project is to create airable videos focusing on the nature of disabilities, the supports that are available, products that work and are helpful, struggles and successes with public programs, and a multitude of other meaningful programs. At the moment I am seeking partners that are willing to be videotaped for airing. I have some ideas of the content, but the specifics would depend on the person.
My belief is that a lot of people are in the world, in our community that are cut off, disenfranchised, making a difference in the world, and being a real person. Inspirational TV? Yes, in part. The first step is to talk about ideas. We can do that over the email or in phone or at a diner. Next, making a tape that would be meaningful to people in our community. There is no money involved in this. The cable companies are required to air for free community service productions. Right now the only cost is time, and buying a tape for a digital video camera.
I am just one person. I am embarking on this journey of my own accord. I work as a professional rehabilitation counselor for the last 20 years, but do not wish to affiliate this idea with my employers. I am think of forming a non-profit that could help to expand the scope of "Abilities TV", Write back and lets talk.
Subject: Re: NM Staff Contact Submittal: Editor - Will you please write an article on me?
From: Tim Gilmer timgilmer@canby.com
Date: Mon, 07 Apr 2003 16:49:15 -0700
To: ysinger@worldnet.att.net
Yvonne, she may reconsider. Don't fret. Life's too short.
I appreciate the positive vibes you spread in your everyday life. It's helpful to all of us who use wheelchairs. And I understand that you have a more difficult time than many of us because some people mistakenly equate your difficulty in speaking with a lack of intelligence. Ultimately, it is their loss.
A master's is no small accomplishment. Whatever you do, keep writing. Your voice will be heard.
Best wishes,
Tim
From: Jeremy Bennett bio_nic80@yahoo.com
Date: Fri, 25 Apr 2003 04:56:04 -0700 (PDT)
To: ysinger@worldnet.att.net
Mrs. Singer,
It's always rough trying to get people to look past the outside, huh? I have spastic CP in my right arm and leg. Sad as it is to say, I graduated from college (UW-Platteville, Wisconsin) with a degree in C.S. nearly a year ago. I have yet to find any 'meaningful' employment, even though I was about to graduate with a 3.5, and a personal recommendation from not only the head of the CS department, but also the head of the I.T support department. Sometimes, it seems like, no matter what, experience or not, people just can't look and not see the sterotype that gets thrown around about people with disabilities, huh? It's rough, but keep trying. I take heart in the fact that I can still volunteer at the local HS and help the special education program there so that kids LIKE you and I don't need to deal with the same... stresses.... we do.
Jeremy Bennett
Subject: Emailing: janweb.icdi.wvu
From: "Hamilton, George T" George.Hamilton@rdec.redstone.army.mil
Date: Tue, 6 May 2003 17:48:16 -0500
To: "Yvonne Singer (E-mail)" ysinger@worldnet.att.net
CC: "George Hamilton (E-mail)" George.Hamilton@comcast.net
Hello Yvonne.
I read about you and really enjoyed your "Yes I Do Exist" article in one of the internet news web portals. I can't remember which one it was, but I do recall that you were seeking employment.
I work for the US Army and also serve as an "Ad Hoc" advisor on disability for the Arsenal and my Directorate. Consequently, I come in contact with a lot of initiatives on hiring the disabled one of which is enclosed.
Please check it out at your convenience, and I wish you all the luck in the world.
Regards,
/s/
George T. Hamilton, Jr.
US AMCOM Industrial Specialist
Government Property Liaison
711-256-842-9391 = Voice
(256) 842-7353 = Fax
(256) 720-0174 = Pager
NOTE: I am now using a TTY telephone. If you are on-post, please dial
4-711 to have the relay service connect you to my number of 842-9391. If you are off-post, simply dial 711 and follow the same procedure as above. You may also elect to communicate via email.
Subject: RE: Attention Brewster Thackeray
From: Brewster Thackeray Thackeray@nod.org
Date: Wed, 14 May 2003 10:27:43 -0400
To: "'ysinger@worldnet.att.net'" ysinger@worldnet.att.net
You're persistant and you're moving ahead, Yvonne, so I'm confident it will pay off. Your own record of accomplishment is terrific. And the connection that a potential employer needs to see from any resume is not what has been accomplished, but what skills and qualities the accomplishment demonstrates. I'm a big believer that the disability experience forges the exact characteristics that employers want, and we're working at N.O.D. to make sure more of them make that connection!
All the best,
Brewster Thackeray
Vice President
National Organization on Disability
910 16th St. NW
Washington, D.C. 20006
202/955-6327
Thackeray@nod.org
www.nod.org