Ever heard of .........Acrocephalopolysyndactyly Type 2????
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If you have heard of these syndromes, then we welcome you to explore
this website further! Acrocephalopolysyndactyly Type 2 is a very rare
genetic syndrome affecting newborns, involving the premature fusion of
the sutures of the skull, as well as deformities of the hands and feet.
It is also known as Carpenter Syndrome. It is so rare that little is known
about it. Children born with this syndrome face many surgeries, possible
learning disabilities and mental retardation, and other health problems. |
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Ben was born in 1995, and was diagnosed with Carpenter Syndrome at a
year old. But he's doing OK! He has his very own home page telling his
story from birth, and we try to keep it updated! Sooo ... please click
on the link below to read on! |
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Last Updated: March 2005 | |
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