"Polymyositis - Patient information and treatment

Stan's Polymyositis Page

You say, "Polymyowhatis?"

Welcome to Stan's Polymyositis Page. This page will provide you with some good, down to earth information about the autoimmune disease - polymyositis.

I will update this page often with the latest and greatest news, photos, and medical information on my treatment and other information I find while researching myositis. Please sign the guest book and feel free to leave your comments on content herein or content you would be interested in seeing in the future.

Current News - Notes & comments from the author

Current Treatment Status as of 05/31/2003: Prednisone 30mg alt/days, Methotrexate 5.0mg once/wk, Calcium 500mg/day, Multi-vitamin 1/day, Pepcid 20mg, Fosamax 70mg/week.

CPK=1883 as of 03/28/2003

Next Dr. Appt: 06/24/2003 @ 09:00am cst

In Trying Times Be Determined

It has been 3 years since my symptoms first occurred. The first year was rough, however the next two have been very slow going, but nevertheless improving. Keep a positive outlook and a good sense of humor... This can be controlled and beaten!!!!

Good Luck to all with Polymyositis!

This is dedicated to those people who have contracted this rare muscle disease, or are close to someone who has. Although there are many diseases in this world much more serious than this one, you will find that having this disease will change your life drastically, and cause you and your loved ones to endure some difficult changes as a result.

This picture is from Christmas 1999. The people here have helped me through what I might consider the most difficult times of my life thus far. I can't begin to express my gratitude for all they have done for me.

Kati, Mom, Dad - I love you guys, thank you for everything! By the way, that's me on the left.

Special Thank Yous...

Mom & Dad Thank you for all the lifts from the car, helping me clean, taking me to the doctor, calls to check on me, dinners, breakfasts, and being there for me in general.

Kati my lovely wife and editor Thank you for sticking with me through thick and thin, for doing dishes, laundry, cooking, cleaning, taking me out when you could, and helping me out of the cars, wheelchairs, fixing my grammar and spelling on this page, etc.   You are the best friend a person could have.

Dr. Bertorini, Jan, Amy, Dr. Pushpa, Sharon Thank you for fighting this disease with a vengeance, for knowing your jobs so well, and for taking blood without collapsing all my veins, for explaining what was wrong with me in plain English, and for explaining my treatments just as well, without you guys I would be in a wheelchair right now, rather than getting my life back on a roll again. From the bottom of my heart, T H A N K   Y O U!

Dr. Edgerly Thank you for diagnosing me flawlessly on the first try, you saved me a lot of unnecessary running and got my treatment underway much quicker than many of the stories of other patients I have read.

Mandy & Bubba Thanks for picking me up out of the car so I could take Kati out to dinner for her birthday, and for being such great friends.

Reggie, Maria, Jeff, Joe, Bonnie, Mike, & Richard, Doris Thank you for all the times you helped me up, or just came over to see how I was doing, or checked in on me in the hospital.   Thank you all!

Anyone I forgot to list Like the academy awards, I can' t list or remember everything or everyone, but any of you that helped me, if you ever need anything from me, I'll be there for you! Thanks.

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You are visitor number since 02/01/2000

Mom & Dad	Thank you for all the lifts from the car, helping me clean, taking me to the doctor, calls to check on me, dinners, breakfasts, and being there for me in general.
Kati my lovely wife and editor	Thank you for sticking with me through thick and thin, for doing dishes, laundry, cooking, cleaning, taking me out when you could, and helping me out of the cars, wheelchairs, fixing my grammar and spelling on this page, etc. You are the best friend a person could have.
Dr. Bertorini, Jan, Amy, Dr. Pushpa, Sharon	Thank you for fighting this disease with a vengeance, for knowing your jobs so well, and for taking blood without collapsing all my veins, for explaining what was wrong with me in plain English, and for explaining my treatments just as well, without you guys I would be in a wheelchair right now, rather than getting my life back on a roll again. From the bottom of my heart, T H A N K Y O U!
Dr. Edgerly	Thank you for diagnosing me flawlessly on the first try, you saved me a lot of unnecessary running and got my treatment underway much quicker than many of the stories of other patients I have read.
Mandy & Bubba	Thanks for picking me up out of the car so I could take Kati out to dinner for her birthday, and for being such great friends.
Reggie, Maria, Jeff, Joe, Bonnie, Mike, & Richard, Doris	Thank you for all the times you helped me up, or just came over to see how I was doing, or checked in on me in the hospital. Thank you all!
Anyone I forgot to list	Like the academy awards, I can' t list or remember everything or everyone, but any of you that helped me, if you ever need anything from me, I'll be there for you! Thanks.