I have what is known as Paraneoplastic Cerebellar Degeneration. It's Sporadic,
and not Hereditary, so my kids don't (thank God!) have to worry. My symptoms are
an almost total lack of balance and a complete lack of "Fine Motor
Control" together with Parkinson's-like "Intention" tremors,
dysarthria (meaning garbled, only partially intelligible speech) and Nystagmus
(meaning "jumping-around" OR "shimmering" vision). You
may be a "TAB" (Tenporarily Able-Bodied),but if so you should know
that, if you don't die first, you WILL oneday be disabled. There are NO
exceptions!
I'm, of course, in a wheelchair I call "Chairzilla" full-time. To
see it go here:
Chairzillla
About 88% of us sooner or later get small-cell lung cancer, which may start
someplace else.
DISABILITY LINKS
I got chairzilla from Adil Dean at The Electric Scooter Store. His phone
number is (407) 677-8440, fax number is (407) 677- 1877 and adress is 2228-A,
Winter Woods Blvd., Winter Park, FL. 32792. To email him, click here
, and to visit the Electric Scooter Store Page, click here
.
If you want to know more about
Ataxia, try InterNAF (I’m on the board, the translator, and the newsletter
editor!)
or NAF
If you want to know more about PCD (the kind
of Ataxia I have), try this:
Justina article
World Association of People with Disabilities
Kim's (CajunHeart's)
Page
The Center for
Patient Advocacy
Home Page