Doris' (and Mom's) email messages to Dad from the BMT Unit

Subject: Daddy, it's me Doris!!!!

Author: Bmtdoris@aol.com at ~Internet Date: 12/9/98 1:10 PM [DAY +6]

Hey, dad, Dr. Yanovich got the other computer in here and it seems to be working great! I am really excited about having this AOL when u get home tell someone to get in at 8:00 if they want to talk to me, im gonna write an e-mail to GowFam to tell em to get on but just incase they dont get it please remind them (rose,oliver whoever!?) to get on ok?? im feeling pretty good\this morning i was dreaming about oat-meal, but they gave me cream of wheat it stayed down and tasted ok. i am also eating those really good crackers called Captain Wafers they're kinda long and sweet tasting, they have em `in restaurants and i like them and they dont upset my stomach, im getting really desperate to eat anything, when i get home i am gonna eat and eat and i dont care if i gain weight, just as long as my mouth and stomach's cravings are satisfied hehehe.what did u have 4 lunch?? im having crackers and Orange Slice can u believe they ran out of GRAPE SLICE???? :( they have none natta mucho uno grape slice left so im having orange :) hehehe write back please love ya

DORIS


12/10/98

hi dad, got ur email on the bike havnt rode it yet. my plts. were low at 28,000 i think so i am gonna get some more plts. and i had a fever of 99.2 well i do right now anyways. they told the doc. he said im already on antibiotics and just to give be the plts.

i miss you too and love u <3

doris


Subject: dad.....

Author: Bmtdoris@aol.com at ~Internet Date: 12/14/98 2:23 PM

what did u have 4 lunch? i just ate a piece of toast with strawberry jam, tastes really really good! but lets just hope i dont get freakin diareea!! Love Doris <3


Subject: Re: dad.....

Author: Bmtdoris@aol.com at ~Internet Date: 12/14/98 3:08 PM

I didn't know you already told me what you had for lunch!!!! DUH!!! hahaha I'm waiting for me stomach to feel right and I am gonna use the bathroom, set-up the bike and stretch and everything. But before that I am gonna go walk around the halls. I'm trying to be very careful of my stomach though.

Have a good rest of the day at work! Love,

Doris


12/14/98

Mom isn't here. I don't know, would the lab notice it or do they just take the counts of it?? I don't know what to think. Mom was asking the nurse this morning, she said "does it seem like the Counts are coming up fast" and she also asked "is it normal" and they said yes everyone's very happy. But I do have doubts. What would we do if it was coming back. Wouldn't it be more than 2,000 if it was coming back. Would I have to do Chemo. over again, like a 3rd induction?? I don't know what to think right now. And I don't have the guts or whatever to bring it up to Dr.Y or Rick. They seem pretty happy about it. Maybe he has had this happen with PEDS bmt patients. And I am getting the growth factor.

What are you gonna have for lunch DAD?? Love,

Doris <3

Dad,

My White Blood Count is 2,000!!!!! Can you believe it?? I sure can't.

My platelets are low at 22,000. So they're going to do a transfusion. I know I shouldn't be thinking about this, but doesn't it kind of seem like the WBC's are going up fast. I know I've been getting the growth factor and the male nurse I have been having says the White Cells come fast. But, My Pulse this morning was 100 and it has been 60-80. So, I'm kind of scared. I know I shouldn't be and it's probably nothing, but is it okay to worry??

I had some loose stools this morning, had some jello I'm not very hungry now but probably will be off and on pop-sicles and jello. I don't know maybe some Waffles tomorrow morning! So I'm trying!! They are going to take away the antibiotics today. So some stuff I will be taking by pill. What are you going to have for lunch?? Did you guys use the Parmesan cheese I bought for your Spaghetti???

I didn't know you were going to work this week! So, I called the house and it was Lana who answered the phone and told me you were working. Gotta go just took my tylenol before the Platelets. I miss you dad.

Love Always,

Doris <3 <3 <3 <3 <3 <3


12/17/98

Hi,

Ken just stopped by. We all talked for about 10 minutes. Mr. McKinny just called , he's from the school. Seventh grade guidance counselor.

What did you have for lunch today? I ate a piece of toast and took like 6 pills. Prednisone,Cyclosporine-- there is one big submarine pill for that one and then 3 other little pills. and then my Acyclovir was a capsule. It went down pretty well. I'm gonna try to eat light and take it slower... because I don't like to throw up. Had diareea this morning ( ruined 2 pairs of undies ) :( They gave me Ativan so I feel kind of woosy/dizzy/weird. My pulse has been 145-120's my nurse mentioned it to the doctors but they said its nothing to worry about since i've done it before.

I can not wait to go home for Christmas!!! No one knows how much it really means to me, being able to watch everyone open their presents!! I can not wait to see the other kids ..... I feel alot more closer to Rosey, and Oliver and Heidi....... can not wait to be home!!! In my own bed!!! At my own house!! Love you,

Doris <3


Well last night Doris ate chicken breast, veg soup and pears. Then she threw it up along with the acyclovir. So she had to take it again. Then at about 4 she woke up with the dry heaves. SHe woke up this morning feeling great until she took her pills and ate some toast. They gave her atavan, that stuff now has her knocked out. But her stomach before she fell asleep was trying to make her puke. It is very upsetting to her she thinks we want her to get home as fast as possible and that is putting stress on her. I explained that she goes home when she goes.

I talked to the 3 yr old mom last night. He is not doing well and she thinks they are just putting off telling her that he is going to die. The Mom is very pissed at Dr. Yanovich and afraid if she talks to him she will go off and be taken from here in cuffs. THat iswhat she said. That women needs help and

I can't help her. SO I told the nurse and hopefully they will help her out some.

Be sure to call after that meeting even if you don't have any news or if we are online send us an email.

Doris got a copy of her counts last night and we will start getting them daily for you. It has the % of gran poly and all that.

Love Michelle


12/18/98

Last night after Doris vomited at 8 she never did it again. She ate some crackers and took her pills they stayed down she also slept thru ER and then on thru the night.

This morning she ate waffles and took all seven of her pills. She is doing fine but seems really tired. She has not even been on the computer yet!!!! Cheryl called this morning I talked for a minute to update her and then Doris spoke to her. She said that GRma got a VCR and I don't know what else she said.

The dr's have not been in yet

When ever the nurses come in I will change Doris' dressing I want to get that over with.

WHen the drs come in I will write you again and let you know what they are saying.

Love You Michelle


Hi dad, its me doris .... i threw up again ,.... it really hurt my throat too :( i feel a little better now ... i just want to come home really bad ..... but luckily this time i didn't have to take my pills over again! i threw up about an hour and a half after i took the pills she said that she wouldn't dare give them to me again! here are my counts for the day today ... (4.5-13.5) WBC ............. 5.9

(4.1-5.4) RBC ....................2.88 (134-357) PLT...................29

They gave me platelets this morning, they take counts every night at mid-night and that's what they got before they transfused .

they gave me atavan for the puking, so i think i will take a nap. Love and Miss you Dad!!! :)

<3 Doris <3