She was born in Kansas City, MO on October 29, 1918. (Mom had a
twin brother who died in the early 90's, complications of
diabetes.) On August 10, 1940, my parents married in Kansas City.
Mom was diagnosed with non-Hodgkin's lymphoma in September of 1998.
She had started in with vague symptoms during the late spring of
that year. Every couple of weeks, she would have heavy night
sweats, which kept getting more and more frequent. And she began
not feeling well, nothing really specific, she just didn't feel
well. Several times we went to her PCP but nothing was showing up.
We were persistent, kept looking for the cause of the night sweats.
We finally went to an infection specialist and he was the first
physician to feel an enlarged liver and a CT scan was ordered. We
finally knew the problem. The scan showed a large tumor in the
abdomen, wrapped around the aorta, vena cava, stomach, and
pancreas. The liver was not enlarged; it had been pushed forward by
the tumor. A second tumor, much smaller, was seen in the right
lower lobe of the lung.
Years before this, mom had been diagnosed with Aortic stenosis and
this condition had slowly worsened over the years. It had reached
the point that surgery was being considered when mom first started
having symptoms from the lymphoma.
The first meeting mom had with the oncologist, we learned that
chemo can be very damaging to the heart valves and mom would be
taking a real chance with chemo. Mom was always the type that
thought you should try treatments, even if they could do more
damage. Personally, I did not want mom to do the chemo but it was
certainly not my decision.
The first dose of chemo was calculated at 20% of the normal adult
dose and mom did ok with it. Three weeks later, the same dose was
given. Within 3 days of the second treatment, mom was in acute
heart failure. Due to the heart failure there would be no more
chemo An abdominal CT scan was done sometime after the second chemo
treatment. I don't remember why, I think the oncologist wanted to
see if the treatment had any effect on the lymphoma. The original
cell type was pancreatic and that is a hard cancer to treat. To
everyone's amazement, the scan showed that the tumor had been
reduced by HALF. The smaller lung tumor was completely gone on the
2nd scan. I firmly believe if the chemo had not caused such heart
failure, mom would have "beat" the lymphoma.
We had hospice involved from the time mom quit chemo. I cannot
applaud hospice enough. They gave our entire family support and we
forged a lasting friendship with mom's hospice nurse
By this time, it was late October and we had family in from all
over the country for mom's 80th birthday. Mom had a goal. She
wanted to see one more birthday for all her children, five of us.
She saw my younger sisters birthday on November 15, Thanksgiving,
my birthday on December 18, Christmas, my older brothers birthday
on December 27, my dad's birthday on March 6 of 1999, Easter, my
older sisters birthday on May 11, my younger brothers birthday on
July 22, and my parent’s 59th anniversary on August 10, 1999.
In the early summer of 1999, she had the worst case of shingles I
have ever seen. They covered her back and chest. She suffered
tremendously and yet she never gave up on seeing her anniversary.
Truly, the only way she made it to the anniversary was she
absolutely did nothing that required the least exertion.
After the anniversary, mom told me she could not live her life
sitting in a chair or in bed. She had not been to Mass in months
and decided she was going to Sunday Mass. Two days later, she was
back in heart failure.
Dad panicked and insisted our hospice nurse call an ambulance to
get mom to the emergency room. Mom was finally stabilized and
admitted. When she was able, she told me she wanted to go home, no
more treatment. Telling dad mom's request was very difficult. He
was not ready to loose mom. None of us were, but I felt mom had the
final say. We brought her home and she died September 6, 1999. That
date happened to be Labor Day, so I now associate Labor Day with
mom's death, as well as September 6, sort of a double whammy.
My mom was one of the most loving persons I have ever known. She
loved her family, flowers, birds, and her religion. We miss her
tremendously.
