XXYY Syndrome Information and Support

For many years, this web page was maintained by me, a parent of a young man with XXYY, as the key source of information and connection to 48, XXYY Syndrome and to other families affected by this genetic disorder. As a result, a parent group was formed and operated informally as the XXYY Parent Network since 1998.

I’m happy to report that many things have changed for the better in this time. In 2003, the parents formed an organization called the XXYY Project. We have a great deal of information to share with you about XXYY Syndrome through our organization and invite you to visit our organization website by clicking on the link below.

There, you will find information on XXYY Syndrome, sometimes referred to as a variant of Klinefelter Syndrome, and the activities of the XXYY Project. We have made tremendous progress over the years. My son, who was diagnosed when he was 10 is now 22 years old. It has been an incredible journey and we have met the most wonderful people we would not have met otherwise.

The XXYY Project still provides the XXYY Parent Network Support group as well as opportunities to be involved with medical research and our annual symposium, which takes place in July.

Please visit our new website and thank you for your interest.

Sincerely,

Renee Beauregard

VISIT THE XXYY PROJECT WEBSITE AT:

• The XXYY Project

Please feel free to contact me at the following address:

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E-mail:amazonb@worldnet.att.net

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